Things People with Fibromyalgia Want you to Know
Fibromyalgia is both a common pain disorder and one that is commonly is misunderstood. If I had a pound for all the times I was told to just exercise and I’ll be better, or to snap out of it, I would probably be a rich person. So to try and dispell a few myths here are a few things, both I and other people with Fibromyalgia want you to know.
Hug Me – But Not Too Hard.
I still want the hugs I used to have, but please my skin hurts, so just be a little more gentle.
Yes, I Spend a Lot of Time in my PJs.
But they are comfortable! They don’t feel like they are about to cut me in half like “normal” clothing does. However, don’t worry I have a different pair for day and night.
Don’t Make Me Feel Bad For Cancelling Or Leaving Early.
I already feel bad enough about it.
I Never Know How I Will Feel Tomorrow.
I can go to bed feeling OK and wake up feeling like I’ve done 10 rounds in a boxing ring, I hate it.
Yes, I Slept For 12 Hours, Yes I Still Feel Fatigued.
It annoyed me as much as you, WHY DOES THIS HAPPEN TO ME!!
I Can Be Quiet When I’m Having A Flare.
But please do check on me, I maybe a while answering, or just grunt back at you, but it means the world.
Bright Lights, Loud Noises, Overly Powerful Scents Can All Set Me Off.
They overload my senses. For instance, the reverberations from loud noises can make me panic and feel ill.
Yes My Face Is Swollen.
As are my hands, wrists, legs, ankles, basically most places.
There is Never a Pain-Free Day.
A “good” day means I can deal with the pain better.
Yes, I was too Hot and Yes Now I am too Cold.
My body can’t regulate its temperature properly I go one way and keep on going till I bounce back the other